Saturday, December 13, 2008

Lily Update!

Another proud Daddy update...

Lily is now 31 hours and counting! Though she continues with some seizures and shallow panting, she continues to get fed every 4 hours and her heartbeat and temperature remain good. However, the doctor explained that based on her breathing, we should expect Lily Grace to be in the arms of Jesus at some point today.

Mommy is all unhooked and is starting to walk a bit. Daddy has been able to stay with Mommy while family and friends take care of the outside activities (Justin, Evan, and Lucy - the dog).

Thank you for your endless support, love, and prayers. We have felt God's grace, comfort, and peace throughout the last two days. The tears (especially Daddy's) are beginning to flow, so please continue to lift us up in your prayers.










8 comments:

chrisem22 said...

Thank you so much for sharing pictures...I really, really love sweet Lily and have been in a continuous prayer for your whole family these past few days. Sending my love...
~Chris

kciechon said...

Hi Fredericks, I just wanted to let you know that we are all thinking and praying for you. We are so proud of precious Lily girl! She is so strong and such a blessing. Please let us know if you need anything. We love all of you, the Ciechons

Chuck Wanamaker said...

Craig and Jessica, we are praying for you, and trusting God to care for you as you entrust Lily to His perfect care. What a wonderful thought to know you will be reunited with your daughter in Heaven! Yet I know it will be very difficult to have to part for now. You have been an inspiration to us and many others as you have demonstrated your belief that God is indeed our Heavenly Father!

Stacy said...

Lily is an absolutely beautiful little girl!!! Thanks you so much for always sharing the journey your family is going through. Hugs to each of you.

Andrea said...

Jessica & Craig,

You are strong, courageous people, and I admire you so much. Lily is a precious little angel. I am so glad you have this time together. You are in the thoughts of all of us at Turtle & Hughes who have been following your blog. We hold you dear in our hearts.

Andrea

pinkvictorian said...

She is a beauty, fearfully and wonderfully made! Thank you for sharing her with all of us. We will add to the great many prayers that we have offered on your behalf.

Misty said...

I am touched beyond words at the beauty of your child and strength of your family. I am expecting a baby boy, early May, that also has Anencephaly. Your story has given me much hope. Thank you for sharing.

Jodi Lansink said...

What a beautiful little angel you have!!! She is precious!!! Thank you for the wonderul website you have put together, we founf out less than a week ago, that our little girl Anencephaly as well, I can on;y hope and pray that we get to spend as much time with you as you did, and will cherish every moment.
Your in my thoughts and prayers...
Jodi